Caregiver Resources & Websites · Lower Cape Fear LifeCare

A curated list of resources that link out to other websites to help you in caring for your loved one who is receiving hospice care.

We have compiled a list of internet resources to help you in caring for your loved one. These resources link out to other websites containing information that maybe helpful to you and your loved one. Remember, you can always ask your care team to answer any questions you may have about care options, available resources, and questions you may have about specific illnesses.

Remember, we’re here for you.

1-800-379-4880

Resources for Cancer Patients and Caregivers

American Cancer Society

(888) 227-5445
Hospice Care | About Hospice Care | American Cancer Society

National Cancer Institute

Advice for coping with being a cancer caregiver.
Caregivers of Cancer Patients – NCI
Resources for Dementia Patients and Caregivers

Aging With Dignity

Provides you with practical information, advice and tools you need to ensure that your wishes and those of your loved ones will be respected.
www.agingwithdignity.org

The Alzheimer’s Association

This association, a world leader in Alzheimer research and support, is dedicated to finding prevention methods, treatments and an eventual cure for Alzheimer’s.
Alzheimer’s & Dementia Daily Care | Alzheimer’s Association
Resources for End Stage Cardiac Patients and Caregivers
Resources for End Stage Pulmonary Patients and Caregivers

Action for Pulmonary Fibrosis

Information about End Stage Pulmonary Fibrosis for patients and Caregivers.
End of life with pulmonary fibrosis | Action for Pulmonary Fibrosis (actionpf.org)

COPD Foundation

Information for the COPD caregiver
The COPD Caregiver | COPD Foundation
Resources for End Stage Liver Patients and Caregivers
Resources for End Stage Renal Patients and Caregivers
Resources for End Stage HIV Patients and Caregivers
Resources for Severe Protein Calorie Malnutrition Patients and Caregivers
Resources for Stroke or Coma patients and Caregivers
Resources for ALS or MS Patients and Caregivers

ALS Association

Provides resources regarding ALS – amyotrophic lateral sclerosis for patients and caregivers.
Find Local Support for ALS | The ALS Association

National MS Society

Provides resources for patients and caregivers affected by MS
Resources & Support | National Multiple Sclerosis Society (nationalmssociety.org)
Resources for Parkinson’s Patients and Caregivers
General Resources Patients and Caregivers

AARP

Provides resources and information for caregivers.
www.aarp.org/caregiving

CaringBridge

Caring Bridge websites feature a patient care journal to update loved ones, guestbook and photogallery.
www.caringbridge.org

Caring Connections

Provides free resources and information to help people make decisions about end-of-life care and services. This website is an initiative of the National Hospice and Palliative Care Organization.
www.caringinfo.org

Family Caregiver Alliance

Provides services to family caregivers of adults with physical and cognitive impairments, such as Parkinson’s, stroke, Alzheimer’s and other types of dementia
www.caregiver.org

National Alliance for Caregiving

Items include books, videos, websites, magazines, fact sheets and other resources addressing the range of issues and questions faced by family caregivers.
www.caregiving.org

National Family Caregivers Association

Contains information and resources to educate, support and empower people who are caregivers. Connect with other caregivers through message boards, blogs and an event calendar.
www.nfcacares.org
Caregiving Quick References

A Caregiver’s Bill of Rights

https://www.caregiver.org/resource/caregivers-bill-rights/

Taking Care of Yourself

https://www.caregiver.org/resource/guide-taking-care-yourself/

The Emotional Side of Caregiving

https://www.caregiver.org/resource/emotional-side-caregiving/

Holding On and Letting Go

https://www.caregiver.org/resource/advanced-illness-holding-on-letting-go/?via=caregiver-resources,caring-for-yourself,spirituality

Ambiguous Loss

https://www.caregiver.org/resource/caregiving-and-ambiguous-loss/?via=caregiver-resources,caring-for-yourself,spirituality

When Caregiving Ends

https://www.caregiver.org/resource/when-caregiving-ends/

Depression and Caregiving

https://www.caregiver.org/resource/depression-and-caregiving/

Spirituality and Grief

https://whatsyourgrief.com/faith-spirituality-and-grief/

The Relationship Between Grief and Belief

https://whatsyourgrief.com/grief-and-faith-grief-belief/

Caregiver Video Library

Caregiver Training

Caregiver Resources

Caregiver Resources

American Cancer Society

National Cancer Institute

Aging With Dignity

The Alzheimer’s Association

Marie Curie

Action for Pulmonary Fibrosis

COPD Foundation

American Liver Foundation

National Kidney Foundation

HIV.gov

Acute.org

American Stroke Association

ALS Association

National MS Society

Parkinson’s Foundation

AARP

CaringBridge

Caring Connections

Family Caregiver Alliance

National Alliance for Caregiving

National Family Caregivers Association

A Caregiver’s Bill of Rights

Taking Care of Yourself

The Emotional Side of Caregiving

Holding On and Letting Go

Ambiguous Loss

When Caregiving Ends

Depression and Caregiving

Spirituality and Grief

The Relationship Between Grief and Belief