We have compiled a list of internet resources to help you in caring for your loved one. These resources link out to other websites containing information that maybe helpful to you and your loved one. Remember, you can always ask your care team to answer any questions you may have about care options, available resources, and questions you may have about specific illnesses.
Remember, we’re here for you.
American Cancer Society
National Cancer Institute
Advice for coping with being a cancer caregiver.
Caregivers of Cancer Patients – NCI
Aging With Dignity
Provides you with practical information, advice and tools you need to ensure that your wishes and those of your loved ones will be respected.
The Alzheimer’s Association
This association, a world leader in Alzheimer research and support, is dedicated to finding prevention methods, treatments and an eventual cure for Alzheimer’s.
Alzheimer’s & Dementia Daily Care | Alzheimer’s Association
Information about End Stage Cardiac and symptom management at EOL
Caring for someone with heart failure at the end of life (mariecurie.org.uk)
Action for Pulmonary Fibrosis
Information about End Stage Pulmonary Fibrosis for patients and Caregivers.
End of life with pulmonary fibrosis | Action for Pulmonary Fibrosis (actionpf.org)
American Association for Respiratory Care
End of Life discussions about COPD
Big Ideas Theater: End of Life Discussions from the RT Perspective – AARC
Information for the COPD caregiver
The COPD Caregiver | COPD Foundation
American Liver Foundation
American Liver Foundation provides current news and information on a variety of liver related topics helping patients, friends and families affected by liver disease.
Caregiver Resources – American Liver Foundation
National Kidney Foundation
Provides resources for patients and caregivers and information on end stage Kidney disease
How Does Palliative Care Improve the Quality of Life for Kidney Patients? | National Kidney Foundation
Provides resources to End Stage HIV (AIDS) patients and caregivers
Activities Combating HIV Stigma and Discrimination
Provides information and resources for Non eating disorder Severe Calorie Malnutrition patients and caregivers.
Severe Malnutrition: Facts and Symptoms | ACUTE
American Stroke Association
Caregiver resources for End Stage Stroke patients
Family Caregivers | American Stroke Association
Provides resources regarding ALS – amyotrophic lateral sclerosis for patients and caregivers.
Find Local Support for ALS | The ALS Association
National MS Society
Provides resources for patients and caregivers affected by MS
Resources & Support | National Multiple Sclerosis Society (nationalmssociety.org)
Provides resources and information about Parkinson’s Disease for patients and caregivers.
Provides resources and information for caregivers.
Caring Bridge websites feature a patient care journal to update loved ones, guestbook and photogallery.
Provides free resources and information to help people make decisions about end-of-life care and services. This website is an initiative of the National Hospice and Palliative Care Organization.
Family Caregiver Alliance
Provides services to family caregivers of adults with physical and cognitive impairments, such as Parkinson’s, stroke, Alzheimer’s and other types of dementia
National Alliance for Caregiving
Items include books, videos, websites, magazines, fact sheets and other resources addressing the range of issues and questions faced by family caregivers.
National Caregivers Library
Provides an extensive library for caregivers with articles, forms, and checklists.
National Family Caregivers Association
Contains information and resources to educate, support and empower people who are caregivers. Connect with other caregivers through message boards, blogs and an event calendar.
A Caregiver’s Bill of Rights
Taking Care of Yourself
The Emotional Side of Caregiving
Holding On and Letting Go
When Caregiving Ends
Depression and Caregiving
Spirituality and Grief
The Relationship Between Grief and Belief